"Evidence of increased PTSD symptoms in autistics exposed to applied behavior analysis"

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mypointlesspov

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Has anyone read the entirety of this study? A friend/colleague just told me that she found out about a relationship between people with ASD who participate in ABA and symptoms of PTSD. I'm not an ASD researcher (but have three years ABA experience from undergrad and grad), but I'm wondering about the methods used in this study. I can't access the full thing through my institution for some reason. This is also the only study I could find about this, but I only spent like five minutes looking.

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whats the criterion A index trauma here?
 
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Yeah, we discussed this in another thread. Long story short:

1)The journal is super low impact factor
2)There is no Criterion A event, which means PTSD is not a possible diagnosis. It would be like diagnosing Bipolar disorders in a person that never had a manic or hypomanic episode. The author never address this, which strains the credibility of it all.
3) The sample is an online survey of people who self identify as ASD, and who have gone through ABA. This sample is nonsensical.
4) The author makes some predictions, which are basically nonsense.
5) The author redefines things to PTSS, which is a political term, not a diagnosis.
 
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Has anyone read the entirety of this study? A friend/colleague just told me that she found out about a relationship between people with ASD who participate in ABA and symptoms of PTSD. I'm not an ASD researcher (but have three years ABA experience from undergrad and grad), but I'm wondering about the methods used in this study. I can't access the full thing through my institution for some reason. This is also the only study I could find about this, but I only spent like five minutes looking.
Regarding their sample: Curious what "self-diagnosed" means.
 
Regarding their sample: Curious what "self-diagnosed" means.

It honestly makes me think of people on like tumblr that "self-diagnose" based on online quizzes and the like. I wonder if that was one of the social media platforms used to recruit participants.
 
not a very APA-style title as well.

The title in general has some problems. As someone who's published articles involving PTSS (sorry, guys), you don't call them "PTSD symptoms." You call them "posttraumatic stress symptoms"... hence the acronym.

Edit: Oh, apparently I did use "PTSD symptoms" in an abstract. But I feel like the use in the title of the article without any context is a bit loaded.
 
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Even anti-ABA folks own up to this being a very poor study, FWIW. The most generous interpretation I’ve heard is “well, maybe people can use it to do a better study.” And the author promotes RPM, which is facilitated communication in a new coat, so yeah, that doesn’t help the credibility much.

I agree with cara re: ptss being fine terminology, though.
 
The title in general has some problems. As someone who's published articles involving PTSS (sorry, guys), you don't call them "PTSD symptoms." You call them "posttraumatic stress symptoms"... hence the acronym.

Edit: Oh, apparently I did use "PTSD symptoms" in an abstract. But I feel like the use in the title of the article without any context is a bit loaded.

I was wrong. My bad. I thought it was post traumatic stress syndrome, not post traumatic stress symptoms.
 
The title in general has some problems. As someone who's published articles involving PTSS (sorry, guys), you don't call them "PTSD symptoms." You call them "posttraumatic stress symptoms"... hence the acronym.

Edit: Oh, apparently I did use "PTSD symptoms" in an abstract. But I feel like the use in the title of the article without any context is a bit loaded.
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In exposure therapy, a patient would not experience hyperarousal from the fear of the memory, but rather from the horror of the induced retraumatization

As a PTSD therapist and PE practitioner, this made me cringe. One of the core principals of PE is that experiencing emotional distress elicited by objectively safe trauma cues is NOT the same thing as being traumatized.

Also, the author equates experiencing the fight/flight response with Criterion A. If that were true, we'd all have PTSD.
 
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I also found this extremely funny... I mean I presume it's a typo, but that's the sort of thing you'd REALLY want to catch in the editing stage:

We modeled these questions on the PCL-5 Psychopathy Checklist self-report measure, which assesses the 20 symptoms of PTSD
 
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In exposure therapy, a patient would not experience hyperarousal from the fear of the memory, but rather from the horror of the induced retraumatization

As a PTSD therapist and PE practitioner, this made me cringe. One of the core principals of PE is that experiencing emotional distress elicited by objectively safe trauma cues is NOT the same thing as being traumatized.

Also, the author equates experiencing the fight/flight response with Criterion A. If that were true, we'd all have PTSD.

This is the same BS that goes around the VA with Vets being told treatment for PTSD is "dangerous." The further infantilizing of people experiencing MH symptoms. It's almost as if these people are advocating for a reintroduction and mass expansion of institutionalization. Everything is dangerous! You need to live in a bubble for fear that you may have to experience some discomfort in your life!
 
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Link to the full text here: https://pdfs.semanticscholar.org/fc06/322a4751cc6b994ba4b0f25ce9543de9eed7.pdf

Re-reading it, it is so bad. Like they just changed criteria and items based on gut feelings and didn't even run psychometrics on the new measures.
Wow- so many flaws/threats to to internal validity. I'll be assigning this one in my Research Designs class for the research review project!

As a board certified and licensed behavior analysts, I do find it important and useful to look a little beyond these design flaws and consider the "what ifs" about such studies. What if this finding is real? What if recipients of ABA services were traumatized? What if there is something about the therapy that I do, teach, and research that is damaging (or at least results in people who received it going on to, later in life, remember it as traumatic)?

I think there is certainly a big problem with how any study operationalizes "ABA" when use as an independent variable. It is such a broad field with many different concepts and practices (and not all of them agreeing with each other). Heck, I just got the latest edition of the gold standard ABA text, and the damn thing is almost 1000 pages long. I think this study was focusing on (or trying to at least) Early Intensive Behavioral Interventions (EIBI) with children with autism. EIBI is certainly less broad a field than ABA in general, but there is still HUGE variation in how things are done in practice. Saying "I received ABA" is akin to saying "I received psychotherapy"- not precise enough to know what exactly went on.

Also, the field has changed dramatically in the years since many of the subjects of the surveys in this study received "ABA" as children. Most of the Autism Insurance Mandates (law requiring ABA coverage for ABA) didn't go into effect until ~2010. This led to better and more consistent standards for credentialling and licensure. It really has only been in the past 5-10 years that not just any schmuck could call him-herself a behavior analyst. I'd seriously question who was doing the "ABA" and what their specific training was for anything that occurred before 2010. I got my first ABA job (a "behavioral specialist" helping to design and implement behavioral program in a brain injury rehab center) literally because I did not have enough experience to sell tacos or foutons (my first and second choice jobs at the time). The field has tightened itself up since, with the BACB- and now ABAI- implementing increasingly strict standards for training and supervision.

As far as EIBI being traumatizing, I really do wonder what these families have experienced. Yes- I occasionally have asked a toddler to do something he didn't want to do and was met with a reaction akin to his witnessing his favorite pet being run through a paper shredder. Just this morning I gently removed my toy hammer from the fist of a 1.5 year old who was trying to take it home with him, and he fell to the ground screaming as if he played striker for Liverpool. I then made a silly face and stomped my feet like a dinosaur, and he giggle and chased me down the hall in the direction of the exit we wanted him to be heading to all along. If this stuff leads to PTSD/S later in life, then there's going to be a huge need for adult trauma therapists in Western Mass in 2038! Most of the EIBI that I've done results in an increase of bubbles, interactive play, smiles, and giggles in the kiddos environment, with a lot less tears and chaos than before I showed up. In those rare circumstances where it doesn't, we try something different (rather than physically forcing the kiddo to do something).
 
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As far as EIBI being traumatizing, I really do wonder what these families have experienced. Yes- I occasionally have asked a toddler to do something he didn't want to do and was met with a reaction akin to his witnessing his favorite pet being run through a paper shredder. Just this morning I gently removed my toy hammer from the fist of a 1.5 year old who was trying to take it home with him, and he fell to the ground screaming as if he played striker for Liverpool. I then made a silly face and stomped my feet like a dinosaur, and he giggle and chased me down the hall in the direction of the exit we wanted him to be heading to all along. If this stuff leads to PTSD/S later in life, then there's going to be a huge need for adult trauma therapists in Western Mass in 2038! Most of the EIBI that I've done results in an increase of bubbles, interactive play, smiles, and giggles in the kiddos environment, with a lot less tears and chaos than before I showed up. In those rare circumstances where it doesn't, we try something different (rather than physically forcing the kiddo to do something).

So this study basically considered any ABA traumatizing. They didn't ask about specific experiences and consider how they might have met Criterion A. And then they asked questions like "were you ever embarrassed about receiving this therapy" and counted it as a positive symptom for PTSD.

Seriously, this study is TERRIBLE. There's no way it went through any peer review.
 
From the author's website:

"ABA for autistics is based on Skinner’s operant conditioning for dogs. "

There is so much wrong with that sentence!

I looked more into the author after posting yesterday. Her graduate education is.... something.
 
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I thought she was enrolled at Sayrbrook.

Also, yes, there is no way she could conduct this type of study and not be biased.
 
I'm still bothered by using the term "autistics" in the title. You'd think someone who is supposedly such an advocate for people with ASD would use person-first language in regards to them.
 
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I'm still bothered by using the term "autistics" in the title. You'd think someone who is supposedly such an advocate for people with ASD would use person-first language in regards to them.
She actually has a section of her website where she addresses why she does not use person first language. It includes a video of two adults who label them Selfs as being autistic, and speak out about other labels such as “person with autism.“However, going from “being autistic” to being “an Autistic” seems to be of her doing.
 
She actually has a section of her website where she addresses why she does not use person first language. It includes a video of two adults who label them Selfs as being autistic, and speak out about other labels such as “person with autism.“However, going from “being autistic” to being “an Autistic” seems to be of her doing.
This is identity-first language. Disabled psychologists have written a couple of really good articles on why it’s important, and APA 7th edition now explicitly allows it.
 
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This is identity-first language. Disabled psychologists have written a couple of really good articles on why it’s important, and APA 7th edition now explicitly allows it.
Thank you. Is there an heuristic for want to use as a default (beyond the obvious “call people what they want to be called”)? When referring to the kiddos I work with, I try to avoid any labeling of them that includes any reference to diagnosis (they are “kids I work with” or “kids who have come to see me”). I never use autism as a modifier of their identity, but only to modify my own behavior (e.g. “a child I gave an autism diagnosis”). Certainly, if a client told me to call them “ an autistic” I would. It is just unusual language to see at this point in time. I also think person-first language can be awkward too.
 
I'm still bothered by using the term "autistics" in the title. You'd think someone who is supposedly such an advocate for people with ASD would use person-first language in regards to them.
You would think someone who is responsible for publishing quality work (e.g., editor or reviewers) would have spotted the PCL error as well. Anyone know if this journal actually has a typical review process or is it more of a predatory journal?
 
I notice that there isn't any language in the paper about whether the study was approved by an institutional review board. Just a sidebar about "ethical approval" stating that the procedures were "in accordance" with ethical standards. This can't be that common, right?
 
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I notice that there isn't any language in the paper about whether the study was approved by an institutional review board. Just a sidebar about "ethical approval" stating that the procedures were "in accordance" with ethical standards. This can't be that common, right?

My take as a non-career research: no. Even in situations where the person isn't part of a facility where they have ready access to an IRB, they'll go through private or other organizations, or will collaborate with someone who does have access to a facility IRB.
 
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I notice that there isn't any language in the paper about whether the study was approved by an institutional review board. Just a sidebar about "ethical approval" stating that the procedures were "in accordance" with ethical standards. This can't be that common, right?
It depends on the journal. Some require it, some don't. Sometimes I include it; sometimes I don't. There isn't an overwhelming expectation about it being in / being out of any article and no stigma with either. In terms of reasons for critiques, it doesn't really 'add' anything of substance someone can say about the science being conducted.
 
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This is identity-first language. Disabled psychologists have written a couple of really good articles on why it’s important, and APA 7th edition now explicitly allows it.
Looking at the article again (no appointments today!) there actually is side bar note from the Editors regarding the use of identify-first language referencing APA 6th.
 
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